Published by Together for Short Lives
As the UK’s charity for children’s palliative care, we collected data, using questions based on the NICE guideline’s baseline assessment, from the regional children’s palliative care networks, on current service provision, and then collated and analysed these responses to inform the development of:
- A report on the findings, for NHS England and the networks
- A tool for the networks to benchmark themselves against other networks, to inform their work plans
- A compendium of local solutions, provided by networks to enable the networks to find answers to gaps in their services
- A resource to help the networks consider how to become managed clinical networks, as recommended by the guideline.
Finally, we organised an interactive summit to allow the networks to further consider the findings and how best to ensure the delivery of the NICE guideline and quality standards.
Link to article here
Paediatrics 