Tag Archives: NICE guidance

Shared Learning: Supporting the children’s palliative care sector to implement the NICE End of Life guideline for children and young people

Published by Together for Short Lives

As the UK’s charity for children’s palliative care, we collected data, using questions based on the NICE guideline’s baseline assessment, from the regional children’s palliative care networks, on current service provision, and then collated and analysed these responses to inform the development of:

  • A report on the findings, for NHS England and the networks
  • A tool for the networks to benchmark themselves against other networks, to inform their work plans
  • A compendium of local solutions, provided by networks to enable the networks to find answers to gaps in their services
  • A resource to help the networks consider how to become managed clinical networks, as recommended by the guideline.

Finally, we organised an interactive summit to allow the networks to further consider the findings and how best to ensure the delivery of the NICE guideline and quality standards.

Link to article here

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Nice Guidance: Adalimumab, etanercept and ustekinumab for treating plaque psoriasis in children and young people

Psoriasisplaque
Image: Google Images

Adalimumab, Etanercept & Ustekinumab are recommended as an option for treating plaque psoriasis in children and young people aged 4 years or older, only if the disease:

  • is severe, as defined by a total Psoriasis Area and Severity Index (PASI) of 10 or more and
  • has not responded to standard systemic therapy, such as ciclosporin, methotrexate or phototherapy, or these options are contraindicated or not tolerated.

     

    Link to guidance here

NICE guidance: End of life care for infants, children and young people with life-limiting conditions: planning and management

This guideline covers the planning and management of end of life and palliative care in for infants, children and young people (aged 0–17 years) with life-limiting conditions. It aims to involve children, young people and their families in decisions about their care, and improve the support that is available to them throughout their lives.

NICE Guidance NG61, published 7th December, 2016