Tag Archives: life limiting

Understanding the needs of disabled children with complex needs or life-limiting conditions: Report by the Council for Disabled Children


This report by the Council For Disabled Children and The True Colours Trust looks at what we can learn from national data on the numbers of children with complex needs or life-limiting conditions.

Link to the report here


‘I have to live with the decisions I make’: laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses


Image source: Pixabay

In this article we lay out factors that bear on the success of clinical consultations and the maintenance of the essential clinician–parent relationship at progression or deterioration of life-limiting conditions or life-threatening illnesses.

Archives of Diseases in Children, 5th December 2016 (Open Access).

NICE guidance: End of life care for infants, children and young people with life-limiting conditions: planning and management

This guideline covers the planning and management of end of life and palliative care in for infants, children and young people (aged 0–17 years) with life-limiting conditions. It aims to involve children, young people and their families in decisions about their care, and improve the support that is available to them throughout their lives.

NICE Guidance NG61, published 7th December, 2016